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Past event: 1st + 2nd Nov 2018 – Epidermolysis Bullosa (EB) For Professionals Study Days

View event information below


Event information


1st and 2nd November 2018


Weston House Lecture Theatre, Education & Training Centre, Gt Ormond St WC1N 3JH

Who should attend?

The course is aimed at health care professionals and carers involved in caring for those with EB, and delegates attend from both within the UK and internationally.


Programme Overview

The annual Epidermolysis Bullous (EB)  course for health care professionals will be run at Great Ormond Street Hospital (GOSH) this year on 1st , 2ndNovember 2018.

The course is jointly organised by EB nursing teams from Great Ormond Street Hospital NHS Foundation Trust and St John’s Institute of Dermatology at Guy’s and St Thomas’ NHS Foundation Trust in conjunction with the Debra charity.


This unique two day study programme includes expert speakers in EB from both  St. John’s Institute of Dermatology and GOSH and there will also be a patient forum.

Topics covered

•  What is EB?

•  Physiotherapy

•  Wound care

•  Occupational therapy

•  Care of a newborn

•  Foot care

•  Nutrition

•  Clinical Procedures

•  Skin Cancer & End of Life

•  Research

•  Psychology

•  Patient Panel

Course Fees

Free for Great Ormond Street staff (limited spaces)
Or £200 for 2 days.  

Refreshments include: tea/coffee & sandwich lunch

Feedback and Suggestions

If you have any feedback from past events that you'd like to share or if you have any suggestions for future events you'd like us to cover please get in contact.

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