Past event: November 2019 – Epidermolysis Bullosa course for professionals

View event information below

Event information


7th – 8th November 2019 (9am – 5.30pm)


Governor’s Hall, St Thomas’ Hospital, Lambeth Palace Road, London SE1 7EH

Programme Overview

EB Clinical Nurse Specialists from Guy’s & St Thomas’ and Great Ormond Street Hospitals (working in collaboration with DEBRA) are running a unique two day study programme about Epidermolysis Bullosa.


The study days are aimed at healthcare professionals and carers who are involved in the management of patients with EB, but may be of interest of anyone wishing to increase their understanding of this rare condition.


This popular course has been running for a number of years and attracts delegates from across the UK and internationally. The course is consistently highly regarded and well evaluated.

“I learnt a lot”  “very informative & well presented”  “amazing, challenging, interesting…” 

“A fantastic opportunity to listen to patients and hear their personal experience”

“A great 2 days. Well organised and led by a passionate team of professionals. Thank you”

Topics covered will include:

  • What is EB?

  • Physiotherapy

  • Wound care

  • Occupational therapy

  • Care of a new born

  • Pain management

  • Nutrition

  • Clinical Procedures

  • Skin Cancer & End of Life

  • Research

  • Anaesthetic management

  • Patient Panel

Course Fees: £225

Free for Guy’s and St Thomas’ & Great Ormond Street staff (limited spaces still available) External delegates £225 for 2 days. Refreshments included: tea/coffee & a sandwich lunch.​


For more course information or to book please contact Karen Snelson

Feedback and Suggestions

If you have any feedback from past events that you'd like to share or if you have any suggestions for future events you'd like us to cover please get in contact.




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Counting House, 

Great Maze Pond,

London, SE1 9RT

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