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Event April 2020

Past event: Nov 2020 Epidermolysis Bullosa Course for Healthcare Professionals and Carers

View event information below

Event information


16th –17th November 2020 (9am – 5.30pm)


*Virtual Course* Log in details will be sent in advance of the course.​

Programme overview

EB Clinical Nurse Specialists from Guy’s & St Thomas’ and Great Ormond Street Hospitals (working in collaboration with DEBRA) are running a unique two-day study programme about Epidermolysis Bullosa.

The study days are aimed at healthcare professionals and carers who are involved in the management of patients with EB, but may be of interest of anyone wishing to increase their understanding of this rare condition.

This popular course has been running for a number of years and attracts delegates from across the UK and internationally. The course is consistently highly regarded and well evaluated.

“I learnt a lot”  “very informative & well presented”  “amazing, challenging, interesting…” 

“A fantastic opportunity to listen to patients and hear their personal experience”

“A great 2 days. Well organised and led by a passionate team of professionals. Thank you”

Topics covered will include:
  • What is EB?

  • Wound management in EB

  • Occupational therapy

  • Care of a new born

  • Pain management

  • Nutrition

  • Clinical Procedures

  • Skin Cancer & End of Life

  • Research

  • Anaesthetic management

  • “The patient voice”

Course Fees

FREE – Spaces are limited

Feedback and Suggestions

If you have any feedback from past events that you'd like to share or if you have any suggestions for future events you'd like us to cover please get in contact.

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